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Posted March 22, 2014 by MaryO

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  1. I have been going through perimenopause since 2006. It came on abruptly and i experienced horrific symptoms from agorophobia to anxiety to severe hot flashes etc. for a couple of yrs. then it seemed to get better and i had 3 good yrs. Clear minded, lived a normal life back to my ole self. Had a great job and things were going great and looked very promising. Then one day i started to feel symptoms returning. Over just a few months the seemed to worsen and i ended up losing my job. I was off of work for a yr and feeling much better. I found another job that turned out to be a nightmare. It caused so much anxiety that i ended up leaving that job. The symptoms began to return shortly before i left. Now 1 1/2 yrs i seem to experience something new every day. Nights are horrible, I get a burning sensation that feels like extremely bad sun burn then the sweating kicks in. It seems to start at 2 a.m. like clock work. Getting back to sleep is almost impossible. I have feelings that things are not real, i get dizzy, pressure in my head, sinus problems, shaking all the time. At night when the burning begins i have the internal shaking from my uterus down my legs, muscle spasms, extreme fatigue and the list goes on and on! My drs have ran test and everything keeps coming back normal. They have tried me on antidepressants which only make me feel worse. The only thing that they have found that helps me just barely get through the day i Ativan and then there are days that it only last a short period of time and im back to shaking again. I havent had a period (if thats what you want to call it) since Jan. 2014. I find my symptoms and anxiety are worse during cyclic times of the month. I also experience ovary pain and lower back pain, numbness in mid back, tingling in my extremities. Oh i could go on forever. Is this really possible to be perimenopause causing this?

    • are you in normal menopause age the reason why I asked is because I’m in early menopause and have the same symptoms my doctor thinks its auto immune disorder such as lupus or fibromyalgia my thyroid level is a 56 a normal level is a 5

      • Yes, i am in normal peri age. I am 54. They have checked my thyroid and say its normal. Also hormone levels a yr ago and say they are normal, but alot has changed since then. The dr. did do blood work for lupus and some other (cant remember the name) all normal. Im so frustrated.

    • I actually AM post menopausal at 39 years old. My doctor’s never really look too much into it like the calls of why I’m going through menopause so young so I ended up in the emergency room and they found out that my tyroid level had plummeted to a 56. I have extreme anxiety I was a agoraphobic for a while. I actually quit my job I don’t want to be around people and I sweat at night. I also feel pressure in my chest and sinuses my face is constantly red across my cheeks I’m not sweating on the outside but on the inside my face feels like its burning up. My doctor seemed to claim it was anxiety. So I asked to be referred to an endocrinologist and I am currently seeking the answers that I have been wanting to know for about 2 years.I could keep going on and on and on about this. Sometimes I feel like I’m going crazy. Doctors today usually only see the symptoms and not try to figure out what the underlying cause is. I really hope you find the answers that you need. I also have a lot of pain in my knees and elbows my neck constant headaches blurred vision dizziness etc ect

      • Sounds like my dr. Throw a script at me, but doesnt really investigate the problem and where its coming from.. I also have the pain in knees, elbows and shoulders. Muscle twitching in neck, face and legs. I too have the sinus pressure and sometimes in the chest. I have read that these are symptoms of hormone changes. Everything that i feel are on the symptoms list, but not to take it that is the problem. I need to have these things check to rule out other problems first. Thank you for your reply. Sure does help to know im not alone.

  2. Oh my I had just poured out my heart and it went poof I am sure it was my mistake. Josh thats a shame I ran out of time. I will just say in a nut shell now yes I had so many of your symptoms I needed to go to alternative medicine the regular doctors didnt have a clue. I dont know where you are from I am from Southern Ca and there is my Doc Archer a chinese medicine, acupuncture and homeopathic and this combination not only helped heal my body but my mind and soul. I am indebted to him forever but he was my answer to a very prayerful time in my life.

    Also look up a book from claire weeks Help for your nerves this is a gem of a book a short read and it helped me thru my darkest fears and anxiety along with Doc archers help.

    Hope you get better lil by lil but dont give in to despair or especially the docs just throwing drugs at you that might make it worst I couldnt take most pills only have a small stash of ativan that I only take a fourth on the days I might had had a period and havent had one since Nov. 2010
    God bless and heal you
    Luv the bug

  3. It sounds like it could possibly be symptom of hashimoto’s disease, in which your thyroid gland is under attack. I was diagnosed in 2006 at the age of 43 although i had the symptoms (much similar to yours) starting in late 2005. What tests did the doctors run and would it be possible for you to post them for us (with the reference ranges)? That would really be a tremendous help 😉

  4. I am 44 yrs old and experiencing internal shaking and it is scary. Will these pass and what can I do to not panic?

    • I am experiencing this too! I wake suddenly at night, tremble internally(or vibrating feeling) then get covered in sweat. It usually starts after 4 hours sleep and then repeats over/over again. I’ve been to several doctors (primary, 2 neurologists, endocrinologist, and a counselor) who say it’s anxiety but that’s difficult to believe!! I’m sleeping calmly. It’s this that is causing anxiety. Only thing off with all the blood work was FSH 18 and thyroid on the high normal range (but primary said that was due to stress). Just found this site. Could it be perimenopause?

      Can anyone please offer me some hope, I’m exhausted searching for answers. It’s been every night for 5 months now!

  5. post menopause and I still get itchy and crawly skin is that normal

    • I still get itchy/crawling skin from time to time. I think it’s caused, in my case, by some type of sugar substitute but I haven’t narrowed it down yet to the exact type/brand.

      I take Benadryl at night and that helps me sleep itch-free.

      Best of luck to you!

  6. What is a good replacement estrogen that is not dr prescribed? I tried the one from Metigenetics called Estrovera and it wouldn’t break down in the digestive system; I saw it often in whole in my stools many times.

  7. Forget diets, change your lifestyle. Over the years my weight fluctuated somewhat but I was always able to drop the extra pounds easily. However, when I turned 50 and menopause hit, I really struggled to lose weight. Cutting out all processed foods, as well as sugar and flour has been key for me. On a friend’s recommendation I bought this Paleo Cookbook to keep meals interesting. Within two weeks my clothes were looser, I had more energy and my mental focus was sharper. With 2 kids still at home and working full-time this has been a good way to transition to a healthier diet. It is full of a variety of recipes that my family enjoys and has made it easy to stick with this new life style. This diet has also helped my 17-year old daughter who suffers from depression. Getting all the processed junk out of our diet has been life changing. Upafter10.com is another good resource for anyone who wants to learn about the science behind diet and depression. I try and incorporate as many organic fruits and veggies as possible and stick to organic and grass fed meats. The benefits for our bodies and our planet far outweigh the cost.

  8. What kind of doctor would you suggest seeing for him hormone issues? I’m not sure I have hormone problems but after reading your article on menopause, I feel like I may be closer to figuring out what’s wrong with me.

    A quick timeline (including issues that may or may not be related):
    May 2015 – back pain, stupid unbelievable back pain. X-rays and an MRI reveal structurally, my back is fine. Also, Short periods (I’m on bc but have always had 5-6 day periods. Now it’s 2-3 and really light), super low libido, dryness.
    August 2015 – super fatigued and “fuzzy” brain, as I call it.
    September 10, 2015- migraine with an auro (never been a headache person). I got the aura on 9/10, 9/11, 9/12 and 9/16.
    September 23, 2015 – woke up feeling like I was vibrating internally. Also had a burning sensation on my arms and neck.
    September 24, 2015 – admitted to the hospital. Stroke, tumor and ms were all ruled out and they diagnosed me with atypical migraines. I was put on Pamelor.
    October 11, 2015 – internal vibrating returned but not as bad and I woke up in a pool of sweat at 2am in a room that’s as cold as an icebox.

    My internist and neurologist refuse to consider the migraines (which started all this) as a symptom and not the main issue.

    Any help pointing me in the direction of a type of specialist would be helpful.

  9. I have internal shaking all the time, weight gain, sweating, depression, and I’m tired all the time. This all started in December when I turned 50. It’s terrible, I have a normal period except I was spotting in the middle of my cycle this month. Has this happened to anyone else?

  10. I have the internal shaking, comes and goes, and the internal buzzing/vibration in my neck for lack of a better explanation within the last month or so, I am 55 years old. It comes and goes, I guess I have to get use to the new me.

  11. Running across this website is a revelation for me. I am 45 and I have had a host of issues that have severely impacted my life. They started when I was 42 during a stressful time and I have had no idea what could be causing them until now! (Doctors chalk all symptoms up to anxiety.) The biggest relief, oddly, is finding that there are other people that wake up with the internal trembling/shaking feeling. I had no idea what that was, but the psych hears “shaking” and assumes “frightened.” It’s not like that at all. I am so hopeful that this may be an actual explanation for that. I also have experienced hot flashes, night sweats, painful intercourse, fatigue, brain fog, heart palpitations, odd new tendency to get fungal infections, waking up during the night, increased general anxiety, and several changes to my ability to tolerate foods– stomach aches, acid reflux, and a milk sensitivity that came out of no where. I have also developed intermittent tingling (neuropathy) in my feet and legs which I am currently being checked for possible vitamin D deficiency bc of that but it sounds like it might be hormonal now too. The list seems to go on and on.

    I am disappointed to see the message boards are closed here. Is there anyplace else someone could point me to connect with and read of women coping with these symptoms, especially the internal shaking one?

  12. Thank you!!! Very helpful !!

  13. Is this the forum for internal tremors?

  14. Is this the internal tremor forum?

  15. what about heart palps are they a problem for anyone else and crazy BP up an down?

  16. Mary O. I just came across this board. I too am suffering from internal shakes and burning skin at night. I have no appetite and nauseated all the time. I’ve had blood work done, urine and thyroid checked. Everything is fine on that end. Please tell me if you got relief from your symptoms? If so, what did you do to get relief. I am so very desperate.

    • Hi Mina,

      I have the same symptoms as you! No appetite and nausea…how are you getting through this? I’ve lost so much weight and the jitters are horrible!

  17. Mina66- There is a new powersurge site at http://powersurge.invisionzone.com/ and a private facebook group called “Power-Surge, For Women Going Perimenopause and Menopause”. I find the FB site more active with members. The facebook page is private so you will need to send a request to “join”. Once you are a part of the group your current friends cannot see what you post there. Likewise the private group members cannot see anything about you other than what is public. The group is separate and not automatically your “friends” on FB.

    Many of us have had your symptoms too. You’re not alone. You can message me if you want more information.

  18. Dear Wisconsin, thanks for reaching out. I will check out the FB page. How can I email you? I was told that the bio identical hormones are probably best or safest in terms of hormones. Any response would be greatly appreciated. I am in desperate need my quality of life is slowly diminishing.

  19. Myrnalourdes You can message me directly on the new Power surge site (there is a message option) or on FB Power-Surge private group.

  20. I’m so sorry. I tried replying on the vision board and it keeps saying not allowed to enter this chat. If you’d like can we chat by email? Mom4sale@cox.net

  21. Okay Myrnalourdes. I will email you directly. For anyone else you reads this that also has problems you can message Mary O. She’s the admin for this site. Also, the Facebook Group is much more active then the Power Surge site. Within Facebook, Go to search and type in Power-Surge and you will be able to request to join this private group. 🙂

  22. The Internal Shaking link does not work

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